Your Opinion Results

These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

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Our biggest CF-related challenge with our child is about appropriate:

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The information I find about CF on the Internet is:

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When I need to talk about my fears regarding CF, I talk to:

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When we need a sitter, we leave our young child(ren) with CF:

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Our family participates in CF fundraising:

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I worry about dating and my CF:

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I closely follow the latest CF developments through

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My CF Voice Nurse Understands my Life with CF

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I plan on (my child with CF) going to college

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I seek out others living with CF:

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MY CF Doctor understands my life with CF

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When it comes to CF-related depression, we:

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Someone in my family has experienced CF-Related Depression:

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CF has made our marriage:

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When I graduated from High School:

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I exercise:

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I blog about my CF:

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In college I do my treatments

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I go to the CF Clinic

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We need more education on:

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My CF Interferes with my work:

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Juggling work and treatment means I sometimes have to give up:

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We need more education on:

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Living with CF means we travel by air:

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My child's school has been accommodating to our needs.

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I have met others with CF in virtual worlds like Second Life.

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As a person living with CF, my biggest concern about having children is:

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What helps you cope with any CF-related concerns?

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Sharing my CF experience with my friends is something I do:

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When it comes to living with CF, my family:

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I find my greatest hope in:

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I follow my treatment plan:

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My favorite online cystic fibrosis support comes from:

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When it comes to paying for CF-related health care costs, what percentage do you estimate your insurance plan covers?

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What CF-related issue would you like to see covered more on CFvoice.com?

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How often do you visit CFvoice.com?

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Where is the first place you go to get information about cystic fibrosis?

These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

Our biggest CF-related challenge with our child is about appropriate:

42%

Eating

46%

Treatment

12%

Exercise

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

The information I find about CF on the Internet is:

15%

Gloom and doom

52%

Sometimes frightening

33%

Encouraging

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

When I need to talk about my fears regarding CF, I talk to:

44%

My parents or significant other

19%

My health care team

37%

Other people with CF

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

When we need a sitter, we leave our young child(ren) with CF:

66%

With family members

23%

With sitters who understand CF

11%

Only with each other

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

Our family participates in CF fundraising:

37%

Once a year

49%

Several times a year

14%

We don’t

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

I worry about dating and my CF:

62%

Frequently

28%

Rarely

10%

Depends on the date

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

I closely follow the latest CF developments through

19%

CF-specific RSS feeds

59%

Visiting CF-specific websites

22%

The news when I catch it

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

My CF Voice Nurse Understands my Life with CF

52%

Very Well

43%

Sometimes

5%

Rarely

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

I plan on (my child with CF) going to college

77%

For sure

16%

Possibly

7%

Doubt it

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

I seek out others living with CF:

34%

In chat rooms

34%

Through our personal CF network

32%

I don't

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

MY CF Doctor understands my life with CF

56%

Very well

35%

Sometimes

9%

Rarely

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

When it comes to CF-related depression, we:

20%

Get Counseling at our CF Clinic

40%

Seek Psychological counseling not affiliated with a CF Clinic

40%

Turn to family and friends

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

Someone in my family has experienced CF-Related Depression:

34%

Never

28%

Once or twice

38%

Frequently

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

CF has made our marriage:

31%

Stronger

34%

More difficult

35%

Just different

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

When I graduated from High School:

50%

I moved into my own place

14%

I moved out, but then back in with my parents

36%

I never moved out

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

I exercise:

42%

Every Day

35%

2-3 times a week

23%

Once a week or less

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

I blog about my CF:

38%

About once a week

8%

Three or more times a week

54%

A few times a month or less

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

In college I do my treatments

44%

In my dorm room

28%

In the Health Center

28%

At Home

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

I go to the CF Clinic

79%

Quarterly

19%

Only when there is a medical problem

2%

We don't use a clinic

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

We need more education on:

36%

Financial issues

44%

Insurance

20%

Time Management

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

My CF Interferes with my work:

38%

Frequently

47%

Occasionally

15%

Rarely

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

Juggling work and treatment means I sometimes have to give up:

28%

Exercise

42%

My social Life

30%

Sleep

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

We need more education on:

33%

Medication

17%

Nutrition

50%

CF Resources

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

Living with CF means we travel by air:

34%

Any time of the year

26%

Never in the fall and winter

40%

We never/rarely travel by air

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

My child's school has been accommodating to our needs.

56%

Most of the time

36%

Sometimes

8%

Not very often

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

I have met others with CF in virtual worlds like Second Life.

36%

No

5%

Yes

59%

What is Second Life?

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

As a person living with CF, my biggest concern about having children is:

40%

The effect it will have on my own health

60%

Passing the CF gene onto my son or daughter

0%

The difficulty of juggling disease management and child rearing

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

What helps you cope with any CF-related concerns?

100%

Physical exercise

0%

Counseling

0%

Talking with family and friends

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

Sharing my CF experience with my friends is something I do:

40%

Regularly

20%

Sometimes

40%

Rarely

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

When it comes to living with CF, my family:

20%

Completely understands what I’m going through

70%

Sometimes understands what I’m going through

10%

Just doesn’t get it

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

I find my greatest hope in:

69%

My school friends and family

31%

My health care team

0%

My friends who have CF

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

I follow my treatment plan:

50%

All the time

17%

About 50% of the time

33%

I don’t have one

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

My favorite online cystic fibrosis support comes from:

0%

Chat rooms and discussion boards

50%

E-mail

50%

Blogs

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

When it comes to paying for CF-related health care costs, what percentage do you estimate your insurance plan covers?

50%

80-100%

25%

60-80%

25%

Less that 60%

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

What CF-related issue would you like to see covered more on CFvoice.com?

25%

Marriage and family planning

25%

Financial issues

50%

Transitioning to adulthood

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

How often do you visit CFvoice.com?

24%

A couple of times a week

48%

About once a week

28%

Occasionally

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These results are not scientific, but do represent the opinions of CFvoice visitors who take the poll. Thanks for participating.

Where is the first place you go to get information about cystic fibrosis?

44%

Internet

46%

My doctor

10%

Other Healthcare Professional (i.e. Nurse or Respiratory Therapist)

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