FEATURE STORY
The Newly Diagnosed: Raising Ella
Ella appeared to be the healthy, happy baby her parents had always dreamed of having. By the time the little girl was 6 months old, however, she had fallen off the growth charts. The baby's new pediatrician, a doctor who had experience with cystic fibrosis…(more)
HEADLINE STORIES
Battle for the Benefit
Dealing with insurance claims is one of the less-than-joyful tasks that those of us with CF must face. Although we may not enjoy the task…
Love Letters from Brad and Lauren
I, too, am amazed and fascinated by the life we share together.…
Keeping PACE
When Jeff turned 6 years old he weighed just 30 pounds. His mother had worried about her little boy's health for years through the continual coughs…
Living Through the Diagnosis
No matter how you hear it – whether it's from a pediatrician, a genetic counselor, or an emergency room doc – the news that your child has cystic…
One Family's Story
The diagnosis created one of life's flashbulb moments for Laura and her husband, an event suspended in time and place by its significance.…
There's No Place Like Hope
The phone call that confirms a diagnosis of cystic fibrosis is devastating for any parent to receive. Hearing that your child has a life-shortening…
Time Management: Getting It All Done
Juggling treatments, medical appointments, and hospitalizations, on top of the hectic life most of us lead these days, means just one thing…
A Continuum of Hope Timeline
See a timeline illustrating the rapid advances made in the last 50 years in the fight against CF…
Letting the World In
Playgrounds, schoolrooms and the homes of little friends are the stomping grounds of childhood. Anywhere children gather, however, germs…
WATCH VIDEOS
In the Shadow of CF
A.J. is a tower crane operator who finishes his job each day, a job that perches him hundreds of feet…
Moving On: Transition
Enticing your 6-month-old to eat her enzyme-sprinkled applesauce is one thing. Telling your teenage daughter…
The View from Inside: Your CF Health Care Team
Brenda Urbanczyk, the program manager of the CF clinic…
In Sickness and In Health
The impact of CF is deep enough to color the daily lives of both partners when one of them has cystic fibrosis.
Family Biographies
Meet the CFvoice families who are sharing their stories to inspire, inform and instill a sense of hope for the future.
Family Matters
When one person in the family has cystic fibrosis, the entire family has it. Not literally, of course…
Health Happens
One of the greatest lessons learned in raising a child with cystic fibrosis is the realization that…
