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Connecting the CF Community

Biographies

A cystic fibrosis diagnosis calls for families to color outside the lines of "normal." Meet the husbands, wives, sons and daughters in our CFvoice community, and hear how they are not only coping, but finding happiness and hope following a CF diagnosis.

 
Laura Biography

Laura; 36 years old; wife; mom

  • Married to Don
  • Stay-at-home mother of two
  • Two children — Jack, 6, and Ellie, 4; Ellie has CF
  • Prenatal testing uncovered Ellie's CF
  • Family leads annual CF mini-march with 3- to 6-year-olds to benefit Cystic Fibrosis Foundation.
Kristi Biography

Kristi; 31 years old; mom; wife

  • Married to Rick
  • Stay-at-home mother of two
  • Two children — Madison, 2, and 7-month-old Brayden; Brayden has CF
  • Brayden diagnosed at birth following meconium ileus
Larry and DeeDee Biography

Larry, 46, and DeeDee, 45; husband and wife

  • DeeDee — Secretary at daughter's school
  • Larry — Third-generation dairy farmer
  • Three children — Kyle, 23, Corey, 21, and Kayla, 14
  • Kyle diagnosed at birth following meconium ileus
  • Kayla diagnosed at six weeks by a sweat test
  • DeeDee's father founded annual Bike-A-Thon to benefit Cystic Fibrosis Foundation the year Kyle was born
Brad and Lauren Biography

Brad, 25, and Lauren, 26; husband and wife

  • Lauren diagnosed at birth following meconium ileus
  • Brad — music editor
  • Lauren — an environmental scientist and freelance writer
Valerie and Jim Biography

Valerie, 48, and Jim, 53; husband and wife

  • Three kids — Kristen, 24, Justin, 23, and Brianna, a 19-year-old cowgirl with CF
  • Brianna diagnosed at 3 years old
  • Valerie — facilities scheduler for local school district
  • Jim — oversees projects at naval shipyard
Brianna Biography

Brianna, 19-year-old cowgirl with cystic fibrosis

  • Diagnosed at 3 years old
  • Studying to be a horse dentist
  • Engaged to be married
  • Wants children, a corral and a long, long life