Rock CF. It's not only how Emily approaches her world, it's also the name she's given her non-profit organization. Emily's life is colored and informed by cystic fibrosis, but not stopped by it. If anything, her CF lifestyle is the magic that keeps her planet revolving. Meet this whirling dervish, and watch her combine music, volunteerism, and an undying optimism in a life dedicated to finding a cure.

Emily S.

Age:25

What's next:She's going to Rock CF

Likes:Drumming, speaking and raising money for a cure

Future Thoughts: “I live my life like there's no tomorrow,” says the spunky drummer from the all-grrrl rock band, Hellen. One minute wth Emily and there's no denying she speaks the truth. She runs (marathons). She drums (like a fiend). She raises money (with passion). Look out, world!

Videos:

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  A Mother's Gift

  Her adoption by a family that had two other children with CF was the first of many blessings in Joan's long life.

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  Back From the Brink

  Chad's decision to turn his life — and his health – around lands him in college with a future full of promise.

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  Living Indubiously

  A story of brotherly love, respect and admiration.

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  Travel in Tandem

  Finding the right partner with which to share your journey always involves a little legwork, especially with CF.

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  Living Uninsured

  Riding a horse or founding a non-profit, this woman has style.

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  Let's Rock CF

  Emily approaches life, and CF, like an open book.

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  Organize Your Trip

  Job, treatment, social life and relationship. How to get it all done?

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  Emily

  Meet a CF surfer who hangs 10 with the likes of Laird Hamilton.